[ARVD-FORUM] Diagnosis of ARVD in children. Patricia O'Neil

[ARVD Symposium]

English - Spanish

I am and have been a pediatric RN for over 30 years.  I am also an ARVD
patient and have had a great deal of experience and communication with a
very large ARVD patient population for over 6 years.  One of my major tasks is
observation  and patient education.  We are seeing very subtle, but what
seems to be apparent arrival of concealed ARVD in some of our population's
children.
This  is, of course, of great concern to our parents who do not wish their
children to have a bad experience, nor do they wish to lose them suddenly.
The object is education and prevention.  I believe it would be of great
value for the members of this forum to engage in a sharing about the pediatric
patients in their patient population.  Perhaps a pattern of information or
some revelation would surface that would reveal that which could assist
everyone in the early diagnosis and treatment of these children.

Per "Is arrhythmogenic right ventricular cardiomyopathy a paediatric
problem too?" [Turrini P, Basso C, Daliento L, Nava A, Thiene G. Images
Paediatr Cardiol 2000;6:18-37] states:

"The disease is seldom recognised in infancy or under the age of 10,
probably because the clinical expression of the disease is normally postponed 
to youth and adulthood."

The clinical expression reveals that which has already existed for some time
and kept children at risk."

Patricia O'Neil

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Soy y he sido enfermera pediatra por mas de 30 anios. Tambien soy una
paciente con DAVD y he tenido mucha experiencia y comunicacion con una gran
cantidad de pacientes con DAVD por mas de 6 anios. Una de mis tareas
principales es la observacion y educacion del paciente. Hemos notado la
llegada de DAVD oculto, muy sutil aunque parece ser evidente, en algunos de
los ninios de la poblacion.
Esto, por supuesto, preocupa mucho a nuestros padres quienes no desean que
sus hijos tengan una mala experiencia, tampoco desean perderlos en forma
repentina.
La meta es la educacion y la prevencion. Creo que seria de gran valor para
los miembros de este foro compartir el conocimiento sobre pacientes
pediatricos en sus poblaciones de pacientes. Quizas surja un patron de
informacion o alguna revelacion que revele aquello que ayude a todos para un
diagnostico precoz y tratamiento de estos ninios.

Ref: "Is arrhythmogenic right ventricular cardiomyopathy a pediatric problem
too?" [Turrini P, Basso C, Daliento L, Nava A, Thiene G. Images Paediatr
Cardiol 2000;6:18-37] afirma:

"La enfermedad se reconoce raramente en la infancia o antes de los 10 anios
de edad, probablemente porque la expresion clinica de la enfermedad
normalmente se posterga hasta la juventud y la edad adulta"

"La expresion clinica revela lo que ha estado existiendo por algun tiempo y
ha mantenido a los ninios en riesgo."

Patricia O'Neil